Understanding Patient Data


ClearView Research collaborated with The Understanding Patient Data (UPD) team to explore Black and South Asian peoples’ thoughts on health data collection and use, why health records are often incomplete or incorrect, and what aspects of data collection and use matter to them.

We sought to engage a range of people from Black and South Asian communities across the UK to discuss their thoughts and experiences concerning patient data. This was done through exploration labs facilitated by ClearView and by community research, both of which are methods developed by us as participatory ways of engaging people in research.


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Sue Ryder

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Parliamentary Joint Committee on Human Rights